FTC/FDA Need to Protect Health Privacy Online–Look at what personal medical info one health site asks

The online marketing of health and medical related services require urgent and serious scrutiny–from regulators, the Congress and the Obama Administration.  CDD’s recent complaint on digital pharma marketing and advertising addresses this issue.  But action is required.  Take for example, an email we received today from Quality Health/Allergies, promoting a “guide to help you sleep.”  In order to get the guide, you are asked to provide information.  Look at this one example and ask yourself.  Aren’t safeguards required to govern the collection and use of such information.  The newsletter features the TRUSTe seal which should raise questions about how effective that group’s work is protecting privacy.

Even more questions, inc. ones about specific drug brands, was asked that what we have below.  Here’s an excerpt from the questionnaire:

Simply respond to the questions below to continue.
1.     Are you (or someone in your household) going to the doctor in the next 30 days to discuss any of the following conditions below?
Alzheimer’s Disease (Moderate-to-Severe)
Bipolar Disorder
Child with Asthma
Chronic Dry Eyes
Diabetes
Osteoarthritis
Parkinson’s Disease
Rheumatoid Arthritis (Moderate-to-Severe)
Sjögren’s Syndrome
Other Condition
No appointment scheduled
Are you the Alzheimer’s Disease patient or the caregiver?
Patient
Caregiver
Can QualityHealth send you a FREE email series with important questions to ask the doctor to properly manage the Bipolar Disorder condition?
Look for this short email series over the next few weeks – check your inbox.
Yes
No
Can QualityHealth send you a FREE email series with important questions to ask the doctor to properly manage the Asthma condition?
Look for this short email series over the next few weeks – check your inbox.
Yes
No
Can QualityHealth email you a FREE email series with important questions to ask the doctor to properly manage the Dry Eyes condition?
Look for this short series over the next few weeks – check your inbox.
Yes
No
Does this person also have any of the following symptoms?
Chronic fatigue
Depression
Lack of energy
Excessive Sleepiness
Snoring
Poor concentration
Yes
No
Can QualityHealth send you a FREE email series with important questions to ask the doctor to properly manage the Osteoarthritis condition?
Look for this short email series over the next few weeks – check your inbox.
Yes
No
Can QualityHealth send you a FREE email series with important questions to ask the doctor to properly manage the Parkinson’s Disease?
Look for this short email series over the next few weeks – check your inbox.
Yes
No
Can QualityHealth send you a FREE email series with important questions to ask the doctor to properly manage the Sjögren’s Syndrome?
Look for this short email series over the next few weeks – check your inbox.
Yes
No
2.     Do you or a loved one feel tired or sleepy because of: (Check all that apply)
A non-traditional work schedule (includes working nights, evenings, rotating or split shifts or anything other than a normal day shift)
Shift Work Disorder
Obstructive Sleep Apnea, which is treated with a breathing device
Narcolepsy (sudden uncontrollable urge to sleep)
None of the above
3.     Have you or someone you love been diagnosed with Atrial Fibrillation, or AFib?
Yes, I have
Yes, a loved one has
No
4.     Do you or someone in your household have Diabetes?
Yes, myself
Yes, someone in my household
No
5.     Do you have any of the following conditions?
(Please check all that apply)
Diabetes
High Blood Pressure
High Cholesterol
Heart Attack
Stroke
Unstable Angina
Smoking or Used to Smoke
PAD (Peripheral Artery Disease)
None of the above
6.     Do you or someone you care for have Psoriasis?
Yes, myself
Yes, someone I care for
No
7.     Do you have any of the following conditions?
Major Depressive Disorder (MDD)
Generalized Anxiety Disorder (GAD)
Social Anxiety Disorder (SAD)
Panic Disorder (PD)
None of the above
8.     Have you or someone you care for been diagnosed with Cancer?
Yes
No
9.     Do you have a child (under 18) who has been diagnosed with Attention Deficit Hyperactivity Disorder (ADHD)?
Yes
No
10.     Have you or someone you care for had a “mini-stroke” (transient ischemic attack or TIA) or stroke due to a blood clot?
Yes, myself
Yes, someone I care for
No

Author: jeff

Jeff Chester is executive director of the Center for Digital Democracy. A former journalist and filmmaker, Jeff's book on U.S. electronic media politics, entitled "Digital Destiny: New Media and the Future of Democracy" was published by The New Press in January 2007. He is now working on a new book about interactive advertising and the public interest.