Digital Pharma Watch—Study Shows Privacy at Risk on Social Media Health Sites

Just as the FTC and (we assume) the Commerce Department’s Internet Policy Task Force are examining what the new safeguards should be for sensitive data involving online health marketing, there is an important new research study in the Journal of the American Medical Infomatics Association.  As Information Week reports, the study “examined 10 diabetes-focused social networking sites [and]  found that the quality of clinical information, as well as privacy policies, significantly varied across these sites.  The study, “Social but safe? Quality and safety of diabetes-related online social networks,” was conducted by researchers in the Children’s Hospital Boston informatics program…and found that only 50% presented content consistent with diabetes science and clinical practice.  The research…also revealed that sites lacked scientific accuracy and other safeguards such as personal health information privacy protection, effective internal and external review processes, and appropriate advertising.”

The study underscores the issues raised by CDD and its colleague privacy and consumer protections groups last November in a complaint filed at the FTC.

Author: jeff

Jeff Chester is executive director of the Center for Digital Democracy. A former journalist and filmmaker, Jeff's book on U.S. electronic media politics, entitled "Digital Destiny: New Media and the Future of Democracy" was published by The New Press in January 2007. He is now working on a new book about interactive advertising and the public interest.